• NCI-AD Data Spotlight: Older Adults and Mental Health

    May 28th, 2022


    Resource from our partners at NCI-AD!


    As you may be aware, May is both Older Americans Month and Mental Health Awareness Month. In light of these observances, the NCI-AD project team has put together an NCI-AD Data Spotlight on the impact of mental health on older adults. Please take a few moments to check out the Data Spotlight PDF and Data Spotlight Video (both available at:


    View Older Adults and Mental Health Data Spotlight PDF
    View Older Adults and Mental Health Data Spotlight Video


    This Data Spotlight highlights the experiences of 6,639 people, ages 65 and older, across 16 states who took part in the 2018-19 NCI-AD Adult Consumer Survey.


    If you have any questions, comments, or feedback please feel free to reach out to ( and Steph Giordano (

  • NCI and the ICI Policy Forum: How Much Do Direct Support Professionals Make? Putting Wages in Context

    Apr 13th, 2022

    Low wages are a major factor contributing to the direct support workforce crisis. This webinar discusses the recent Policy Research Brief, which compared wages of direct support professionals (DSPs) to what people earn in other similar professions. It also puts them in context by comparing DSP wages to living wages—the cost of living based on typical expenses that meet minimum standards of living.

    ICI's Julie Bershadsky moderated this forum. The discussants were Dorothy Hiersteiner from HSRI and Mary Lou Bourne from Management Support Solutions.

    The recording of the ICI Policy Forum held on April 6, 2022 and the slides are now available to view and download.

  • NCI®-IDD COVID-19 Survey Supplements--Including the In-Person Survey (IPS) COVID-19 Supplement!

    Feb 25th, 2022

    NCI®-IDD COVID-19 Survey Supplements--Including the In-Person Survey (IPS) COVID-19 Supplement!


    In response to the national COVID-19 public health emergency, National Core Indicators®- Intellectual and Developmental Disabilities (NCI®-IDD) is pleased to announce data is now available from COVID-19 Supplements to all NCI-IDD surveys. The COVID-19 Supplements were optional for states, and were intended to support the understanding of the experience of people with intellectual and developmental disabilities (IDD), their families, provider agencies, and the DSP workforce at the beginning of the COVID-19 pandemic. Data were collected between July 1, 2020 and June 30, 2021. These survey findings reflect the far-reaching effects of the pandemic on IDD supports throughout our nation and inform states as they plan for the future.

    *NEW* In-Person Survey (IPS): This survey is conducted as a face-to-face conversation completed with adults receiving at least one paid service from the state DD system (in addition to case management).
    2020 NCI-IDD IPS National and State Survey Report-COMING SOON!

    2020 NCI-IDD IPS Survey Report- COVID Supplement
    2020 NCI-IDD IPS COVID Supplement-Infographic


    Staff Stability Survey: This survey collects comprehensive data on the Direct Support Professional (DSP) workforce providing support to adults (age 18 and over) with IDD. The goal of the survey and the resulting data is to help states examine workforce challenges; identify areas for further investigation; benchmark their workforce data; measure improvements made through policy or programmatic changes; and, compare their state data to those of other states and the NCI-IDD average.

    2020 NCI-IDD Staff Stability Survey Report
    2020 NCI-IDD Staff Stability Survey Report - COVID Supplement
    2020 NCI-IDD Staff Stability Survey Report- Infographic


    Family Surveys: This group of surveys are administered via mail and contain three survey subtypes: Adult/Family Survey; Child Family Survey; and, Family/Guardian Survey. All respondents are family members of people with IDD receiving supports from the state.

    2020 NCI-IDD Family Survey National and State Reports-COMING SOON!

    2020 NCI-IDD Family Surveys- COVID Supplement
    2020 NCI-IDD Family Surveys- COVID Supplement Infographic